
Why is community outreach important for research?
Community outreach is vital for Huntington's Disease (HD) research because it:
Facilitates Participant Recruitment:
Reaching affected individuals and families is crucial for clinical trials and studies. Outreach helps connect researchers with a diverse pool of participants.
Increases Awareness and Reduces Stigma:
By building connections within communities, we can raise awareness about HD, reduce stigma, and create a more supportive environment for those affected, while also gathering valuable insights for research.
Gathers Valuable Data:
Connecting with the public allows researchers to gain a deeper understanding of the real-world impact of HD, which is crucial for developing effective therapies and improving the lives of those living with this condition.
Enhances Support and Advocacy:
Community outreach plays a critical role in HD research by facilitating participation in studies, providing access to support resources, and empowering individuals to advocate for better understanding and treatments.
Patient-facing and community events
HOPE & COPE Huntington’s Disease Educational Day, UCLA, 11/3/2024
Panel of 18 and under and HD, HDSA Convention, Spokane, WA, 6/1/2024