Why is community outreach important for research?

Community outreach is vital for Huntington's Disease (HD) research because it:

  • Facilitates Participant Recruitment:

    • Reaching affected individuals and families is crucial for clinical trials and studies. Outreach helps connect researchers with a diverse pool of participants.

  • Increases Awareness and Reduces Stigma:

    • By building connections within communities, we can raise awareness about HD, reduce stigma, and create a more supportive environment for those affected, while also gathering valuable insights for research.

  • Gathers Valuable Data:

    • Connecting with the public allows researchers to gain a deeper understanding of the real-world impact of HD, which is crucial for developing effective therapies and improving the lives of those living with this condition.

  • Enhances Support and Advocacy:

    • Community outreach plays a critical role in HD research by facilitating participation in studies, providing access to support resources, and empowering individuals to advocate for better understanding and treatments.

Patient-facing and community events

  • HOPE & COPE Huntington’s Disease Educational Day, UCLA, 11/3/2024

  • Panel of 18 and under and HD, HDSA Convention, Spokane, WA, 6/1/2024​

HDSA LA Chapter Team

Hope Walk

October 19, 2024

HDSA LA - Shine A Light on HD Fundraising Dinner

October 27, 2024