The Huntington’s Disease Society of America (HDSA)
A national organization that works to improve the lives of people with HD and their families. Their website has a wealth of information on how to manage symptoms and live with the disease, with advice on how to find support groups and nursing homes.
Huntington’s Disease Youth Organization (HDYO)
An international non-profit supporting, educating, and empowering young people impacted by Huntington's Disease (HD).
HDBuzz is the first internet portal for Huntington’s disease (HD) research news written by HD clinicians and scientists.
Family Caregiver Alliance (FCA)
Provide services to family caregivers of adults with physical and cognitive impairments.
CaringInfo
Provides free resources to educate and empower patients and caregivers to make decisions about serious illness and end-of-life care and services.
Educate the world about Huntington's disease and Juvenile Huntington's disease. The aim is to serve our community and provide information, education, and resources.